Right now I am in Houston, Texas with Larry. We went to the Burzynski Clinic today and it was so
wonderful. Dr. Burzynski knows exactly what he is doing, and is very detailed with my case. He reveiwed
the Gene Marker test results and the Her2 protein was with- in range. Yeah! I got to meet with 4 doctors today. They are
Dr. Marquee, Dr. Kubove and Dr. Kahn. One is an oncologist, another a regular doctor I believe, and then the radiologist.
I had my list of about 15 questions answered and had my medicine adjusted. Good news, the tykerb has been reduced to
2 a day instead of 3 a day...a savings of about $700.00 a month. The zolinza has been changed as well.
Also, I am to drink 1/2 cup of grapefruit juice with my rapamune to help it work better.
Overall, I am greatly improving and as Dr. Burzynski himself said...he believes by the next appointment
or by February...I may be all better. He is very hopeful. (although I will need to continue with the rituxan every 6 months
for maintenance for 2-3 years...depending on blood results)
It's truly a blessing to be able to experience this miracle in my life. I appreciate all the prayers for me and our family.
Even the guy helping us at the airport asked my name and said that he would pray for me. I started to cry, it was so
embarrassing. Larry and the family very supportive and it sure makes it easier for me.
So, my job is to keep taking the pills and pray that Larry can afford to buy them.
We are being blessed with more work which will help. It also is a great blessing to have our son, Thomas, serving
in the mission field. He is working hard and sending blessings our way.
Houston is very humid. Some of the store windows are covered with moisture. It's 75% humidity. I don't mind it
though. With huge oak trees and New England homes...it's very pretty. We also went to the Houston Temple this
afternoon. The Spirit was strong and more inspiration came to both of us. We are just having a great time together.
Our hotel is very nice with a living room, a king size bed which is very comfortable...etc. etc. It's called the Sheraton and
it's located right in the middle of Houston. We put in a bid to priceline.com and said that we would pay $49.00 a night
they accepted our price. It has a heated pool and a jacuzi, a gym and more. They deliver us the newspaper and
yea....we're spoiled and loving it!
But the most important part of this trip was going to the clinic and getting the care. We spent
about 45 minutes with the radiologist and he showed us the difference in the pet scans. It was quite interesting as he
showed us the cross section of my body and compared the pet scans. Most of the tumors have gotten smaller and the
cancer is less active... or is gone. Everyone that works at the clinic is so upbeat and very professional. It's very impressive
and you just don't want to leave it. We love to be there.
Friday I go to the clinic in Chandler for the rutixin IV and will contine it for the next two Fridays after that.
Oh, and by the way... Dr. Burzynski will be on the Larry King Live Show on CNN on Monday, Oct. 19th. I think at 6 pm.
They are preparing for more patients. They are always very busy but will most likely get a lot busier. Well, Larry
is falling to sleep down here in the lobby and wants me to go up to the hotel room. So...good night!
