Showing posts with label persevere. Show all posts
Showing posts with label persevere. Show all posts

Saturday, February 26, 2011

World Rare Disease Day is Monday, Feb. 28th!


Reminder! -- this coming Monday, February 28, is World Rare Disease Day -- a day to honor and show support for all who are affected by a rare disease such as Niemann-Pick Disease.

Did you know that over 30 million Americans are affected by a rare disease? In the U.S., a rare disease is defined as any disease or disorder which affects fewer than 200,000 people at any given time.

Easy ways to show your support for World Rare Disease Day include wearing jeans to school or work, wearing and distributing PERSEVERE wristbands, or making a donation to support research into Niemann-Pick Disease.

Please visit our special World Rare Disease Day page to learn more about how you can participate in this worldwide observance. Thank you!

Tuesday, December 21, 2010

Holiday Gifts & Year-End Giving to Support NNPDF


Programs of Research and Family Services Benefit

Online Shoppers: Use this special Amazon.com link to shop online, and GoodSearch when you surf the Web – both benefit the NNPDF-- and you can receive special coupons and discounts, as well.

Each year, a growing number of families depend on the NNPDF for medical information, research updates and emotional support as they struggle to learn about a rare disease while caring for an ill family member.

We, in turn, depend on those with the compassion and the financial resources to help us drive forward the research that will ultimately result in treatments and a cure for NPD, and to provide support services to those affected by this disease.

As you consider your year-end tax planning, we’d like to remind you that a gift to the NNPDF can reduce your income tax obligation, while providing meaningful support for the work of the foundation. If you designate your gift in honor of a loved one, the NNPDF will gladly send them an acknowledgement card.

The NNPDF gratefully accepts direct financial donations, United Way and Combined Federal Campaign contributions, gifts of stock, in-kind donations, and planned gifts such as bequests, beneficiary designations, or life insurance policies. Please visit our special page for more information about these philanthropic year-end gift ideas.

Donations may be mailed to: NNPDF; P.O. Box 49; Fort Atkinson, WI, 53538. Online credit card donations may be made here. We invite you to contact the NNPDF Central Office with any questions.

If you have friends or relatives who might be interested in making a year-end gift in honor of a loved one, please forward this information to them, as well.

2011 Wall Calendars and PERSEVERE Clothing
Ring in 2011 with these quality 2011 wall calendars in two very special designs! Choose from playful puppies or lush scenic paintings by New England Artist Don Greer, grandpa of 7-year-old Naomi Tyrrell (NPC). Calendars are just $10 each, and shipping is free on quantities of five or more.

Encourage your family and friends to “Press On! Keep At It! Get it Done!” with the very popular, stylish and comfortable PERSEVERE wear t-shirts and hoodies.

Sales of these calendars and PERSEVERE wear benefits the NNPDF, raising funds for research and family support services.

Order calendars and PERSEVERE wear directly from Lorna Tyrrell – click the links above for complete details and order forms.

Thank you for your generous support, and "Happy Holidays" to you!