Take the 11-11-11 Challenge to Support the NNPDF!

November 11, 2011, presents a unique opportunity to raise awareness and funding for Niemann-Pick Disease. Thus, we are announcing to all our families, friends and supporters…

The National Niemann-Pick Disease Foundation’s 11-11-11 Challenge!

Through October, Niemann-Pick Disease Awareness Month, right up until 11-11-11, we are asking you to reach out to your contacts, asking them for their support in our urgent Quest for a Cure for Niemann-Pick Disease.

To mark 11-11-11, we want you to ask your family, friends and co-workers to each donate $11 to the NNPDF.

These modest donations, added up, could give a significant boost to the foundation’s 2011 revenue goals. After all, who should be more willing to support this cause than the close family and friends who see on a daily basis the heartbreaks and struggles a family faces due to NPD?

Our goal for the “11-11-11 Challenge” is to get 111 people to get 11 of their contacts to each donate $11. This would ultimately add up to over $13,000 to be dedicated to research, designated by NPD type!

Further, we ask that you encourage your contacts to forward the “11-11-11 Challenge” on to their friends and families, spreading awareness of NPD and the plight faced by families who receive this diagnosis even further.

The top two fundraisers (one for NPC, one for ASMD/Types A & B) will receive a prize in the form of a $100 gift certificate to a national retailer. Visit the NNPDF's 11-11-11 Challenge page and the October Awareness page for more information.

Time is Short - Make a Year-End Gift Today

Two Days Left to Make a Tax-Deductible Contribution

When you make a financial donation to the National Niemann-Pick Disease Foundation, you get so much more than a tax deduction. You will enjoy the wonderful feeling of knowing you’re making a tangible difference in the lives of children, adults and families living with the challenges of NPD!

Your gift drives the essential research that will unlock the mysteries of NPD, bringing effective treatments and therapies for the ravages it wreaks on the body and brain.

Your generosity also provides important support services for the families who walk the lonely road of a rare disease, helping them connect with others who know and understand, and providing them with the information they so desperately need.

Even the most modest donation can make an enormous difference when added together with the gifts of others. Please, remember the families of the NNPDF in your year-end charitable giving!

Thank you for making a difference in the lives of those battling Niemann-Pick Disease!

Make a donation to the NNPDF

Happy New Year from the NNPDF!

During these final days of 2010, we at the National Niemann-Pick Disease Foundation give thanks for individuals like you who are vital to fulfilling our mission.

Thank you for being part of our efforts to offer support to families and to further research into treatments and a cure for Niemann-Pick Disease!

We'd like to humbly remind our generous supporters that a year-end gift to the NNPDF can reduce one's income tax obligation while providing meaningful support for the work of the foundation and offering the gift of hope for all those suffering from NPD.

The NNPDF gratefully accepts direct financial donations, United Way and Combined Federal Campaign contributions, gifts of stock, in-kind donations, and planned gifts such as bequests, beneficiary designations or life insurance policies.

If you'd like to designate your gift in honor of a loved one, the NNPDF will gladly send out a card to the honoree acknowledging your gift.

One item of special note -- a late-breaking tax measure allows IRA year-end donations until January 31st. This key charitable tax break took effect December 17th, allowing those age 70 1/2 or older to make tax-free 2010 year-end charitable gifts of up to $100,000 from their IRA accounts up until January 31st, 2011.

Please visit our Web site for more information about philanthropic year-end gift ideas, and as always, we invite you to contact us with any questions.

With deepest gratitude, we thank you for your continued support, and we send our most sincere wishes to you and your family for a wonderful holiday season and a healthy, happy New Year!

Holiday Gifts & Year-End Giving to Support NNPDF

Programs of Research and Family Services Benefit

Online Shoppers: Use this special Amazon.com link to shop online, and GoodSearch when you surf the Web – both benefit the NNPDF-- and you can receive special coupons and discounts, as well.

Each year, a growing number of families depend on the NNPDF for medical information, research updates and emotional support as they struggle to learn about a rare disease while caring for an ill family member.

We, in turn, depend on those with the compassion and the financial resources to help us drive forward the research that will ultimately result in treatments and a cure for NPD, and to provide support services to those affected by this disease.

As you consider your year-end tax planning, we’d like to remind you that a gift to the NNPDF can reduce your income tax obligation, while providing meaningful support for the work of the foundation. If you designate your gift in honor of a loved one, the NNPDF will gladly send them an acknowledgement card.

The NNPDF gratefully accepts direct financial donations, United Way and Combined Federal Campaign contributions, gifts of stock, in-kind donations, and planned gifts such as bequests, beneficiary designations, or life insurance policies. Please visit our special page for more information about these philanthropic year-end gift ideas.

Donations may be mailed to: NNPDF; P.O. Box 49; Fort Atkinson, WI, 53538. Online credit card donations may be made here. We invite you to contact the NNPDF Central Office with any questions.

If you have friends or relatives who might be interested in making a year-end gift in honor of a loved one, please forward this information to them, as well.

2011 Wall Calendars and PERSEVERE Clothing
Ring in 2011 with these quality 2011 wall calendars in two very special designs! Choose from playful puppies or lush scenic paintings by New England Artist Don Greer, grandpa of 7-year-old Naomi Tyrrell (NPC). Calendars are just $10 each, and shipping is free on quantities of five or more.

Encourage your family and friends to “Press On! Keep At It! Get it Done!” with the very popular, stylish and comfortable PERSEVERE wear t-shirts and hoodies.

Sales of these calendars and PERSEVERE wear benefits the NNPDF, raising funds for research and family support services.

Order calendars and PERSEVERE wear directly from Lorna Tyrrell – click the links above for complete details and order forms.

Thank you for your generous support, and "Happy Holidays" to you!

Online Auction Site LIVE! Your help is requested!

The NNPDF's Niemann-Pick Disease Awareness Online Auction site is now live and operational!

Please visit the NNPDF October Awareness Month Online Auction site now and see what we are cooking up for October 1st, when opening bids will be accepted.

New auction items are being added daily, and you can begin window shopping today! Some exciting items already posted include an autographed Brett Favre Minnesota Vikings jersey, a handmade quilt, authentic Chinese wall scrolls and masks, a DVD of the Super Bowl Champion New Orleans Saints, and gift cards from R.E.I. and Target.

The list is growing daily as families around the U.S. and Canada are busy making, collecting and donating items for this important event which will raise funds in support of family services programs and essential research into Niemann-Pick Disease.

Please Help!
Your participation is needed to help make this auction the huge success we know it can be!

Please think about what you and your family might donate to the auction. Popular auction items include handmade crafts and gifts, gift cards to nationwide retailers or service providers (restaurants, department stores, home improvement stores, hotels, bookstores, carpet cleaning, etc.), sports memorabilia, collectors’ items, vacation packages, tickets to sporting or theater events, jewelry, artwork, tools, etc.

Items may be donated by an individual/family, or donations may be solicited from your area businesses.

(Please, no glass or fragile items that may be damaged in shipping, no alcohol or firearms, and nothing that cannot be shipped or for which shipping costs would be prohibitive.) (Shipping costs will be the responsibility of the buyer, unless the donor elects to donate shipping costs.)

Auction to Feature State-Themed Baskets
One special feature of the NNPDF auction will be state-themed “baskets,” or “collections,” with items unique to a state or region. Examples might be non-perishable food items representative of a state or region, regional-flavor clothing or jewelry, professional or college sports memorabilia or tickets, souvenir/collectors’ items, etc.

How to Donate
Please let us know ASAP what you plan to donate for the auction, so we can post it to the site. Please complete the form available on the NNPDF Web site and send the form, together with a photo (jpg format if possible), to NNPDF Board Member/Development Committee Co-Chair Ryan Kelly.

Please do NOT send auction items to the NNPDF; items will be shipped directly from the donor to the winning bidder at the close of the auction (October 31st), with the buyer responsible for the cost of shipping. (Donors may choose to cover the cost of shipping, particularly for small or lightweight items which cost little to ship.)

Spread the Word!
Please email the link to the NNPDF October Awareness Online Auction Site to all your friends, family and acquaintances so they can get in on the fun and excitement, as well! This is a fabulous opportunity to raise significant funds for the Quest for a Cure, but we need your help in getting the word out.

Contact Us
Please feel free to contact the NNPDF Central Office with any questions you may have about the Online Auction. We look forward to working together with you on this exciting opportunity! Together, we can make a difference!